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Citizen Endo

Main Project Information
Goal Track daily life experience with and without endometriosis.
Task Use Phendo app to track daily life or endometriosis experience
Where Online only
Description

Phendo is an app designed to be an observational research study to establish a catalog of the signs and symptoms of endometriosis as experienced by those with with endometriosis in contrast to those without endometriosis symptoms. In addition, there are opportunities to reflect upon your collected data.

How to Join

To download the Phendo research app, visit Phendo on the iTunes store.
Once downloaded, you will need to consent to participate in the study through the app.
Women who suspect they have endometriosis or have already been diagnosed with endometriosis are eligible as participants (other eligibility criteria include being over 13 years old and having had at least one menstrual period).
Anyone who has had at least one menstrual period in their lifetime is eligible to use the app as control participant.
Use Phendo to record daily experience of endometriosis symptoms, or of daily life experience if participating as a control.

Project Timing The Citizen Endo project asks participants to track their daily life experience using the Phendo app for at least 3 months. Participants should try to track every day to enhance the depth of experience of those with and without endometriosis.
Website http://citizenendo.org
Social Media
App URL https://itunes.apple.com/us/app/phendo/id1145512423?mt=8
Materials List Apple iPhone, iPod Touch, or iPad, Android smartphone
Special Skills Use a smartphone app to record daily life experience with or without endometriosis.
Ideal Age Group High school (14 - 17 years), College, Graduate students, Adults, Families, Seniors
Ideal Frequency Every day
Average Time Less than an hour
Spend the Time outdoors
Type of Activity Exclusively online, At home
Training Materials citizenendo.org/phendo
Media Mentions
and Publications
Tags angiogenesis, citizen science, data, data collection, data science, data visualization, digestion, digestive health, disease, disease research, disease surveillance, endometriosis, food, health, medicine, menstrual, menstrual cycle, menstruation, mhealth, pain, period, reproduction, reproductive health, uterine lining, uterus, women, women's health
Project Updated 04/26/2017